Websites, domains, hosts that links to alliance-maladies-rares.org
Our database shows, that the website alliance-maladies-rares.org is linked by a total of 8 websites.
Number of websites/domains displayed: 8
Results found: 8
Websites discovered:
Accueilhttp://pageoverview.com/website-report/france-acouphenes.org
Site de l'association France Acouphènes.Information sur les pathologies auditives. Acouphènes, hyperacousie, neurinome de l'acoustique, syndrome de Menière, surdité ... Groupes de paroles, infos, rendez-vous, résumés des conférences, annonces de résultats de recherches validées. Prévention des traumatismes auditifs.
- Expected expiration: December 27th in 2018
- Creation date: December 27th in 1999
- Renew date: February 2nd in 2017
Connecting Rare Disease Patients Globally - RareConnecthttp://pageoverview.com/website-report/rareconnect.org
RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.
- Expected expiration: May 29th in 2018
- Creation date: May 29th in 2011
- Renew date: April 20th in 2017
- Google Analytics: 4015132-5
Bienvenue sur notre site de l’ANC - anc-narcolepsiehttp://pageoverview.com/website-report/anc-narcolepsie.com
presentation du site de l'ANC (Association Nationale de Narcolepsie Cataplexie et des Hypersomnies Rares)
- Expected expiration: March 16th in 2019
- Creation date: March 16th in 2006
- Renew date: June 28th in 2017
Accueilhttp://pageoverview.com/website-report/polyposes-familiales.fr
La polypose familiale est une affection d'origine génétique provoquant le développement de nombreux polypes sur le colon. Le site de l'APTEPF vous décrit cette affection et son traitement
- Expected expiration: July 13th in 2017
- Creation date: July 13th in 2015
- Renew date: July 13th in 2016
- Google Analytics: 69825661-1
Alliance Maladies Rares : un collectif, un mouvement et un réseau.http://pageoverview.com/website-report/alliance-maladies-rares.org
La mission de l’Alliance Maladies Rares est de susciter, de développer, sur les questions communes aux maladies rares et aux handicaps rares, d’origine génétique ou non, toutes actions de recherche, d’entraide, d’information, de formation et de revendication.
- Expected expiration: September 21st in 2018
- Creation date: September 21st in 2001
- Renew date: August 21st in 2017
- Google Analytics: 39978101-2
AMSAO - Accueilhttp://pageoverview.com/website-report/amsao.fr
Association des Malades Souffrant d'Angioedèmes - France
Association Française du syndrome d'Angelman - AFSAhttp://pageoverview.com/website-report/angelman-afsa.org
L'AFSA : Association francophone du syndrome d'Angelman
- Expected expiration: January 24th in 2019
- Creation date: January 24th in 2000
- Renew date: January 24th in 2018
- Google Analytics: 26853557-28