Websites, domains, hosts that links to rareconnect.org
Our database shows, that the website rareconnect.org is linked by a total of 21 websites.
Number of websites/domains displayed: 21
Results found: 21
Websites discovered:
Ectodermal Dysplasia Societyhttp://pageoverview.com/website-report/ectodermaldysplasia.org
- Expected expiration: September 21st in 2018
- Creation date: September 21st in 2000
- Renew date: September 14th in 2017
MEBO RESEARCHhttp://pageoverview.com/website-report/meboresearch.org
- Expected expiration: June 3rd in 2017
- Creation date: June 3rd in 2010
- Renew date: March 12th in 2017
- Google Analytics: 37051913-1
The Atypical HUS Foundationhttp://pageoverview.com/website-report/atypicalhus.ning.com
Community website for The Atypical HUS Foundation
Pemphigus Pemphigoid Foundation (IPPF) | a common hope an uncommon bondhttp://pageoverview.com/website-report/pemphigus.org
The IPPF provides patients & doctors worldwide with information about pemphigus and pemphigoid, & provides patients & their caregivers with comfort & support.
- Expected expiration: October 15th in 2017
- Creation date: October 16th in 1997
- Renew date: October 16th in 2016
- Google Analytics: 30707475-1
Cryoglobulinemia, Vasculitishttp://pageoverview.com/website-report/allianceforcryo.org
The Alliance For Cryoglobulinemia works to connect Patients. We want to help you understand how to live with Cryoglobulinemia. Cryoglobulinemia is a rare disease.
- Expected expiration: September 7th in 2018
- Creation date: September 7th in 2012
- Renew date: September 7th in 2017
- Google Analytics: 38228082-1
Home - dravet.chhttp://pageoverview.com/website-report/dravet.ch
Willkommen auf der Website der Vereinigung Dravet Syndrom Schweiz
- Google Analytics: 41336631-1
Connecting Rare Disease Patients Globally - RareConnecthttp://pageoverview.com/website-report/rareconnect.org
RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.
- Expected expiration: May 29th in 2018
- Creation date: May 29th in 2011
- Renew date: April 20th in 2017
- Google Analytics: 4015132-5
Cystinosis Foundation - Founded in 1983 - Serving Families for Over 25 Yearshttp://pageoverview.com/website-report/cystinosisfoundation.org
The ORIGINAL Cystinosis Foundation. We are a non-profit organization, with more than 34 years of International experience in supporting and educating families and the medical community through the dissemination of educational literature, funding research, and annual conferences.
- Expected expiration: June 25th in 2018
- Creation date: June 25th in 1999
- Renew date: June 1st in 2017
- Google Analytics: 13224290-46
Homehttp://pageoverview.com/website-report/epp-deutschland.de
Selbsthilfe EPP e.V. - "WENN SONNE WEH TUT"
- Renew date: December 28th in 2007
Ehlers-Danlos syndrom riksförbundhttp://pageoverview.com/website-report/ehlers-danlos.se
- Creation date: September 11th in 2003
- Expected expiration: September 11th in 2020
- Google Analytics: 86289705-1
FMF España - Asociación de Fiebre Mediterránea Familiarhttp://pageoverview.com/website-report/fmfspain.com
Bienvenidos a la web oficial de FMF España, la Asociación de enfermos de Fiebre Mediterránea Familiar de España.
- Expected expiration: September 9th in 2019
- Creation date: September 9th in 2015
- Renew date: September 4th in 2017
Lowe Syndrome UKhttp://pageoverview.com/website-report/lowetrust.com
Set up in 2000, The Lowe Syndrome Trust supports families affected by Lowes Syndrome and funds medical research into Lowe Syndrome
- Expected expiration: November 29th in 2021
- Creation date: November 29th in 2001
- Renew date: November 22nd in 2016
- Google Analytics: 55329280-2
NZORD - Homehttp://pageoverview.com/website-report/nzord.org.nz
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.
- Expected expiration: June 22nd in 2018
- Creation date: June 22nd in 2001
- Renew date: June 9th in 2017
- Google Analytics: 17121647-49
About HESA - Hashimoto's Encephalopathy SREAT Alliancehttp://pageoverview.com/website-report/hesaonline.org
- Expected expiration: March 21st in 2019
- Creation date: March 21st in 2013
- Renew date: February 17th in 2018
- Google Analytics: 62911690-1
- Google Plus Account: +HesaonlineOrgMedia
RUNX1 Research Program | The online community for individuals with RUNX1 FPD/AMLhttp://pageoverview.com/website-report/runx1.com
The RUNX1 Research Program is a research and advocacy venture committed to funding world-class, innovative and cross-disciplinary cancer research to find a cure for those with the germline RUNX1 mutation, a familial platelet disorder with a predisposition to leukemia. The program also aims to support, inform, educate and connect patients and healthcare providers in the RUNX1 community. Frequently Asked Questions.
- Expected expiration: February 23rd in 2021
- Creation date: February 23rd in 2016
- Renew date: March 3rd in 2016
- Google Analytics: 107702658-1
EURORDIS - The Voice of Rare Disease Patients in Europehttp://pageoverview.com/website-report/eurordis.org
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 745 rare diseases patient organisations in 65 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
- Expected expiration: November 23rd in 2017
- Creation date: November 23rd in 2000
- Renew date: December 21st in 2016
- Google Analytics: 4015132-1
- Google Plus Account: 114387522754314829925
SGP homehttp://pageoverview.com/website-report/porphyria.ch