Websites, domains, hosts that links to rarediseases.org
Our database shows, that the website rarediseases.org is linked by a total of 64 websites.
Number of websites/domains displayed: 64
Results found: 64
Websites discovered:
The Atypical HUS Foundationhttp://pageoverview.com/website-report/atypicalhus.ning.com
Community website for The Atypical HUS Foundation
Home - The Guthy-Jackson Charitable Foundationhttp://pageoverview.com/website-report/guthyjacksonfoundation.org
- Expected expiration: October 10th in 2017
- Creation date: October 10th in 2008
- Renew date: April 17th in 2016
- Google Analytics: 23971517-1
Galactosemia Foundationhttp://pageoverview.com/website-report/galactosemia.org
The Galactosemia Foundation is a support organization for people with galactosemia and their families.
- Expected expiration: February 8th in 2027
- Creation date: February 7th in 1997
- Renew date: January 16th in 2018
Please Tape Me Back Togetherhttp://pageoverview.com/website-report/pleasetapemebacktogether.blogspot.com
- Adsense ID: pub-1556223355139109
- Google Plus Account: 107585558623090395301
Welcome ~ APS Foundation of America, Inchttp://pageoverview.com/website-report/apsfa.org
- Expected expiration: June 18th in 2017
- Creation date: June 18th in 2005
- Renew date: October 31st in 2016
- AddThis User: xa-4a21b4387bef1480
The Quad Spothttp://pageoverview.com/website-report/thequadspot.com
The Quad Spot is the blog for the disabled, elderly, chronically ill & shut in and shares the tips & Tricks Jessica Kennedy DAWS (Differently-Abled Writer & Speaker) learned being a ventilator-dependent quad.
- Expected expiration: September 14th in 2018
- Creation date: September 14th in 2016
- Renew date: September 13th in 2017
- Google Analytics: 84317456-1
- Adsense ID: pub-3410540613930330
MEBO RESEARCHhttp://pageoverview.com/website-report/meboresearch.org
- Expected expiration: June 3rd in 2017
- Creation date: June 3rd in 2010
- Renew date: March 12th in 2017
- Google Analytics: 37051913-1
this gutsy lifehttp://pageoverview.com/website-report/thisgutsylife.com
- Expected expiration: August 19th in 2017
- Creation date: August 19th in 2016
- Renew date: August 19th in 2016
Keratoconus Group | Support Community and Bloghttp://pageoverview.com/website-report/keratoconusgroup.org
The largest keratoconus support community and blog
- Expected expiration: August 3rd in 2018
- Creation date: August 3rd in 2016
- Renew date: May 6th in 2017
- Adsense ID: pub-1556223355139109
- Google Analytics: 46516257-3
- Google Plus Account: +KeratoconusGRP
Josiehttp://pageoverview.com/website-report/josiebeangrace.blogspot.no
- Adsense ID: pub-1556223355139109
Rare Disease Day USA | Homehttp://pageoverview.com/website-report/rarediseaseday.us
Join the National Organization for Rare Disorders (NORD) in raising awareness for the 30 million patients with rare diseases in the U.S. on Rare Disease Day®.
- Expected expiration: January 13th in 2018
- Creation date: January 13th in 2009
- Renew date: May 28th in 2012
- Google Analytics: 5033474-2
Short Bowel Foundationhttp://pageoverview.com/website-report/shortbowelfoundation.org
- Expected expiration: January 24th in 2019
- Creation date: January 24th in 2011
- Renew date: April 1st in 2017
- Google Analytics: 76115700-1
UMDF – The United Mitochondrial Disease Foundationhttp://pageoverview.com/website-report/umdf.org
- Expected expiration: December 31st in 2019
- Creation date: December 31st in 1998
- Renew date: November 15th in 2016
- Google Analytics: 4491446-1
- Google Plus Account: 109599791610901846365
Pompe.com | Pompe Genetic Disease Resourceshttp://pageoverview.com/website-report/pompe.com
- Expected expiration: October 8th in 2018
- Creation date: October 8th in 1999
- Renew date: October 4th in 2016
- Google Analytics: 7979955-5
Myotonic Dystrophy Foundation | Care & A Curehttp://pageoverview.com/website-report/myotonic.org
- Expected expiration: December 5th in 2020
- Creation date: December 5th in 2001
- Renew date: December 6th in 2015
- Google Analytics: 4573934-1
My Care Plushttp://pageoverview.com/website-report/mycareplusonline.com
My Care Plus is a secure, convenient website developed especially for patients. My Care Plus allows patients to view their Personal Health Records whenever they need them.
- Expected expiration: January 30th in 2018
- Creation date: January 30th in 2012
- Renew date: December 2nd in 2016
- Google Analytics: 24754028-2
FG Syndrome Family Alliancehttp://pageoverview.com/website-report/fgsyndrome.org
FG Syndrome is an X-linked genetic syndrome, believed to affect both boys and girls; which causes a variety of physical anomolies, developmental delays, and special health needs.
The Low Vision Gatewayhttp://pageoverview.com/website-report/lowvision.org
Your starting point to access the low vision resources of the world
- Expected expiration: February 2nd in 2018
- Creation date: February 1st in 1997
- Renew date: December 4th in 2016
herenciageneticayenfermedadhttp://pageoverview.com/website-report/herenciageneticayenfermedad.blogspot.com.es
- Adsense ID: pub-1556223355139109
- AddThis User: xa-4b9fec091d76655b
Connecting Rare Disease Patients Globally - RareConnecthttp://pageoverview.com/website-report/rareconnect.org
RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.
- Expected expiration: May 29th in 2018
- Creation date: May 29th in 2011
- Renew date: April 20th in 2017
- Google Analytics: 4015132-5
日に以て親しむ-新井俊一ブログhttp://pageoverview.com/website-report/shunichi-arai.blogspot.jp
- Adsense ID: pub-1556223355139109
- Google Plus Account: 110438179581765986184
Periodic Paralysis Intl. |http://pageoverview.com/website-report/hkpp.org
Medically accurate, up-to-date information about the periodic paralyses accessible to patients, caretakers and physicians.
- Expected expiration: May 2nd in 2018
- Creation date: May 2nd in 2001
- Renew date: May 2nd in 2017
- Google Analytics: 249883-6
About HESA - Hashimoto's Encephalopathy SREAT Alliancehttp://pageoverview.com/website-report/hesaonline.org
- Expected expiration: March 21st in 2019
- Creation date: March 21st in 2013
- Renew date: February 17th in 2018
- Google Analytics: 62911690-1
- Google Plus Account: +HesaonlineOrgMedia
Alpha-1 Foundation | Alpha1.orghttp://pageoverview.com/website-report/alpha-1foundation.org
- Expected expiration: October 25th in 2026
- Creation date: October 25th in 2000
- Renew date: March 11th in 2017
- Google Analytics: 1121255-1
a beautifully messy lifehttp://pageoverview.com/website-report/beautifullymessylife.com
- Expected expiration: July 16th in 2018
- Creation date: July 16th in 2015
- Renew date: July 16th in 2017
- Google Analytics: 67422918-1
- Adsense ID: pub-1556223355139109
Home - NORD (National Organization for Rare Disorders)http://pageoverview.com/website-report/rarediseases.org
NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.
- Expected expiration: June 1st in 2017
- Creation date: June 2nd in 1998
- Renew date: May 31st in 2016
- Google Analytics: 5033474-1
- AddThis User: ra-5472fc722f3d414b
HopefulCircle.org: Welcome to HopefulCirclehttp://pageoverview.com/website-report/hopefulcircle.org
- Expected expiration: March 3rd in 2018
- Creation date: March 3rd in 2011
- Renew date: January 21st in 2017
- Google Analytics: 15572394-1
Adverum Biotechnologieshttp://pageoverview.com/website-report/adverum.com
- Expected expiration: April 10th in 2019
- Creation date: April 10th in 2002
- Renew date: September 23rd in 2017
- Google Analytics: 24756814-1
On Loan From Heavenhttp://pageoverview.com/website-report/onloanfromheaven.blogspot.com
- Adsense ID: pub-1556223355139109
- Google Plus Account: 107909497556170295926
Foundation for Prader-Willi Researchhttp://pageoverview.com/website-report/fpwr.org
- Expected expiration: August 7th in 2018
- Creation date: August 7th in 2005
- Renew date: October 17th in 2015
- Google Analytics: 525345-1
The LAM Foundation | A Breath of Hopehttp://pageoverview.com/website-report/thelamfoundation.org
- Expected expiration: January 15th in 2018
- Creation date: January 15th in 2006
- Renew date: April 6th in 2016
- Google Analytics: 18502749-1
- Google Plus Account: 114681913606848738659
GeneTests - Homehttp://pageoverview.com/website-report/genetests.org
a medical genetics information resource for physicians, genetic counselors, healthcare providers and researchers
- Expected expiration: September 7th in 2018
- Creation date: September 8th in 1998
- Renew date: September 8th in 2016
- Google Analytics: 42638813-1
Alpha-1 Foundation | Alpha1.orghttp://pageoverview.com/website-report/alpha1.org
- Expected expiration: January 1st in 2018
- Creation date: January 2nd in 1996
- Renew date: March 11th in 2017
- Google Analytics: 1121255-1
Cystinosis Foundation - Founded in 1983 - Serving Families for Over 25 Yearshttp://pageoverview.com/website-report/cystinosisfoundation.org
The ORIGINAL Cystinosis Foundation. We are a non-profit organization, with more than 34 years of International experience in supporting and educating families and the medical community through the dissemination of educational literature, funding research, and annual conferences.
- Expected expiration: June 25th in 2018
- Creation date: June 25th in 1999
- Renew date: June 1st in 2017
- Google Analytics: 13224290-46
Choroby rzadkiehttp://pageoverview.com/website-report/chorobyrzadkie.blogspot.com
Blog o chorobach rzadkich
- Adsense ID: pub-1556223355139109
- Google Analytics: 43049975-1
- Google Plus Account: 112995075408593381412
Children with Spinal Muscular Atrophyhttp://pageoverview.com/website-report/csma.org.ua
Спинальная мышечная атрофия, помощь, информационная поддержка регистры международные Украинский Spinal muscular atrophy SMA Registry
- Creation date: July 1st in 2006
- Expected expiration: June 29th in 2018
- Google Analytics: 52712964-2
- AddThis User: ra-4def2f2e680b99d8
Life's a Polyphttp://pageoverview.com/website-report/lifesapolyp.blogspot.com
Life's a Polyp is a personal health blog of my journey with Familial Adenomatous Polyposis, a rare genetic disease resulting in cancer & other issues.
- Adsense ID: pub-1556223355139109
- Google Plus Account: +LifesapolypBlogspotFAP
Atlantic Research Group | Everyone Deserves To Be Wellhttp://pageoverview.com/website-report/atlanticresearchgroup.com
At ARG, we connect individuals with rare diseases to organizations driven to develop potential treatments. We advance smarter clinical trials.
- Expected expiration: January 14th in 2019
- Creation date: January 14th in 2005
- Renew date: January 12th in 2018
FEMEXER – Federación Mexicana de Enfermedades Rarashttp://pageoverview.com/website-report/femexer.org
Federación Mexicana de Enfermedades Raras
- Expected expiration: March 16th in 2018
- Creation date: March 16th in 2011
- Renew date: March 11th in 2017
- Google Plus Account: +FemexerOrg_fanpage
Home Page - Patient Worthyhttp://pageoverview.com/website-report/patientworthy.com
- Expected expiration: March 26th in 2021
- Creation date: March 26th in 2015
- Renew date: January 23rd in 2018
- Google Analytics: 59446393-3
- Google Plus Account: 116920562811534338664
National Adrenal Diseases Foundation - NADFhttp://pageoverview.com/website-report/nadf.us
The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
- Expected expiration: February 28th in 2018
- Creation date: February 28th in 2007
- Renew date: January 21st in 2009
- Google Analytics: 50385807-1
Home - Dup15qhttp://pageoverview.com/website-report/dup15q.org
Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.
- Expected expiration: September 3rd in 2017
- Creation date: September 3rd in 2009
- Renew date: February 8th in 2017
- Google Plus Account: 117387176102160777938
Pyruvate Kinase Deficiency | Understanding and living with PKDhttp://pageoverview.com/website-report/pyruvatekinasedeficiency.com
If you or a family member have been diagnosed with Pyruvate Kinase Deficiency, you probably have many questions running through your head. What kind of disease is it? Will I or my family member be able to live a normal life? What precautions should I take? The mission of this website is to answer your questions.…
- Expected expiration: January 14th in 2019
- Creation date: January 14th in 2015
- Renew date: November 15th in 2017
- Google Analytics: 52447-2
RAVICTI® (glycerol phenylbutyrate) for Urea Cycle Disordershttp://pageoverview.com/website-report/ravicti.com
Learn about RAVICTI as a treatment option for urea cycle disorders (UCDs), and hear from others living with a UCD. See safety.
- Expected expiration: November 7th in 2019
- Creation date: October 1st in 2010
- Renew date: January 19th in 2018
- Google Analytics: 87389039-1
Stewart Home & Schoolhttp://pageoverview.com/website-report/stewarthome.com
A residential school for people of all ages with intellectual disabilities.
- Expected expiration: May 9th in 2019
- Creation date: May 8th in 1996
- Renew date: March 10th in 2014
- Google Analytics: 53338006-1
Hemophilia Federation of Americahttp://pageoverview.com/website-report/hemophiliafed.org
The Hemophilia Federation of America is the largest patient-focused group for those with Hemophilia, von Willebrand Disease, and other bleeding disorders.
- Expected expiration: January 31st in 2018
- Creation date: January 30th in 1997
- Renew date: January 31st in 2017
- Google Analytics: 37733233-1
- AddThis User: ra-51e57b94448871fa
The Myelin Project – A Quest for Lifehttp://pageoverview.com/website-report/myelin.org
- Expected expiration: September 4th in 2019
- Creation date: September 5th in 1995
- Renew date: January 16th in 2018
- AddThis User: wp-7303c5354b21bbb684bea42df79ab77b